P H R E B - CPFCE
National Directory of Patient Organizations

About

The PHREB Committee on Patient, Family, and Community Engagement (CPFCE) in Health Research Ethics was created through PCHRD Special Order No. 341 to ensure that the policies of PHREB in promoting and safeguarding the rights and well-being of patients, families and their support networks, in the various stages of research are being addressed.

The CPFCE will be tasked to ensure a rights based, patient, family, and community oriented approached that embeds the patients, families, and communities' voice int eh practice and process of research from governance priority setting, choice of methodologies, and actual conduct of research, knowledge translation process, and uptake if new policies, practices, and processes.

The Committee is composed of the following members:

Ms. Carmen V. Auste

Chair

Prof. Clemen C. Aquino

Co-Chair

Ms. Cara Magsanoc-Alikpala

Member

Ms. Ma. Cecilia M. Sison

Member

Dr. Robert Louie P. So

Member

Dr. Paul Perez

Member

Mr. Josef de Guzman

Member

Contact Us

Philippine Health Research Ethics Board c/o Philippine Council
for Health Research and Development
Department of Science and Technology

Executive Lounge, DOST Compound.
Gen. Santos Ave., Bicutan, Taguig City

Ms. Marie Jeanne B. Berroya mbberroya@pchrd.dost.gov.ph
Ms. Angeline P. Abad apabad@pchrd.dost.gov.ph
Mr. John Marc R. Cambonga jrcambonga@pchrd.dost.gov.ph
PHREB's

National Directory of Patient Organizations

No. Organization Name Category Condition Served Patients Scope of Services Type of Organization View
1 Alzheimer's Disease Association of the Philippines (ADAP)

NCR - National Capital Region
Network/Alliance
  • Alzheimer's Disease, Dementia
  • Older Persons

    National
    Main
    2 Ankylosing Spondylitis Association in the Philippines Inc.

    NCR - National Capital Region
    Individual Patient/Patient Support Group
  • Ankylosing Spondylitis
  • Children

    Adults

    Older Persons

    National
    Main
    3 Association for Adults with Autism Philippines

    NCR - National Capital Region
    Persons w/ Disabilities (PWD) Group
  • Autism
  • Regional
    Main
    4 Attention Deficit Hyperactivity Disorder (ADHD) Society of the Philippines

    NCR - National Capital Region
    Persons w/ Disabilities (PWD) Group
  • ADHD
  • Children

    Adults

    Older Persons

    National
    Main
    5 Autism Society Philippines, Inc.

    NCR - National Capital Region
    Persons w/ Disabilities (PWD) Group
  • Autism
  • Children

    Adults

    Main
    6 Cerebral Palsied Association of the Philippines, Inc.

    NCR - National Capital Region
    Individual Patient/Patient Support Group
  • Children and Adults with Cerebral Palsy
  • Children

    Adults

    National
    Main
    7 Coalition of Leprosy Advocate of the Philippines, Inc.

    Region VII - Central Visayas
    Network/Alliance
  • Person affected by Leprosy and their Family
  • Adults

    Older Persons

    Main
    8 Dialysis PH Support Group Inc.

    Region III - Central Luzon
    Individual Patient/Patient Support Group
  • ALL RENAL DISEASES, CHRONIC KIDNEY DISEASE (ALL STAGES)
  • Children

    Adults

    Older Persons

    National
    Main
    9 Down Syndrome Association of the Philippines, Inc. (DSAPI)

    NCR - National Capital Region
    Persons w/ Disabilities (PWD) Group
  • Pesons with Down Syndrome
  • Children

    Adults

    Main
    10 Dumaguete Effata Association of the Deaf, Inc.

    Region VII - Central Visayas
    Persons w/ Disabilities (PWD) Group
  • Deafness
  • Children

    Adults

    Older Persons

    Main
    11 EPCALM Adult Leukemia Foundation of the Philippines Inc.

    NCR - National Capital Region
    Individual Patient/Patient Support Group
  • Leukemia
  • Adults

    National
    Main
    12 Everlasting HOPE Cebu Ministry, Inc.

    Region VII - Central Visayas
    Individual Patient/Patient Support Group
  • Cancer
  • Children

    Main
    13 Eye hEAR Foundation, Inc.

    Region VI - Western Visayas
    Persons w/ Disabilities (PWD) Group
  • EYEsight and hEARing problems
  • Children

    Adults

    Older Persons

    National
    Main
    14 Gift2Life Inc. (G2L)

    NCR - National Capital Region
    Individual Patient/Patient Support Group
  • Breast Cancer
  • Youth

    Adults

    Older Persons

    National
    Main
    15 Hemophilia Advocates Philippines

    NCR - National Capital Region
    Individual Patient/Patient Support Group
  • Hemophilia
  • Children

    Adults

    National
    Main
    16 Hemophilia Philippines (HAPLOS Community) Foundation Inc.

    NCR - National Capital Region
    Individual Patient/Patient Support Group
  • Hemophilia and other inherited bleeding disorder
  • Children

    Adults

    Older Persons

    National
    Main
    17 Hepatology Society of the Philippines

    NCR - National Capital Region
    Network/Alliance
  • Liver Disease
  • Children

    Adults

    Older Persons

    National
    Main
    18 ICANSERVE Foundation Inc.

    NCR - National Capital Region
    Network/Alliance
  • Breast Cancer
  • Adults

    National
    Main
    19 Kaisahan ng Magulang at Anak na MayKapansanan (KAISAKA) Inc.

    NCR - National Capital Region
    Persons w/ Disabilities (PWD) Group
  • Children with Disabilities
  • Children

    Limited to Metro Manila
    Main
    20 Kythe Foundation Inc.

    NCR - National Capital Region
    Individual Patient/Patient Support Group
  • Cancer and Other Chronic Illness
  • Children

    Main
    21 Life Haven Center for Independent Living

    NCR - National Capital Region
    Persons w/ Disabilities (PWD) Group
  • Cross Disability
  • Main
    22 Link Center for the Deaf

    NCR - National Capital Region
    Network/Alliance
  • Individuals who are deaf
  • Children

    Main
    23 Lymphoma Philippines Foundation

    NCR - National Capital Region
    Individual Patient/Patient Support Group
  • Lymphoma
  • National
    Main
    24 Madre de Amor Hospice Foundation Inc.

    Region IV-A - CALABARZON
    Individual Patient/Patient Support Group
  • Cancer and other Chronic Diseases
  • Children

    Adults

    Older Persons

    Laguna Area only
    Main
    25 MDH Cancer Crusaders Club

    NCR - National Capital Region
    Individual Patient/Patient Support Group
  • Cancer
  • Adults

    Main
    26 New Vois Association of the Philippines, Inc. (NVAP)

    NCR - National Capital Region
    Individual Patient/Patient Support Group
  • HEAD AND NECK CANCER, MOSTLY LARYNGEAL CANCER
  • Adults

    Older Persons

    National
    Main
    27 Noordhoff Craniofacial Foundation of the Philippines, Inc.

    NCR - National Capital Region
    Individual Patient/Patient Support Group
  • Cleft and Craniofacial cases
  • Children

    Adults

    National
    Main
    28 Philippine Accessible Disability Services Inc. (PADS)

    Region VII - Central Visayas
    Persons w/ Disabilities (PWD) Group
  • deaf and physical disability
  • Children

    Adults

    National
    Main
    29 Philippine Alliance of Patient Organizations

    NCR - National Capital Region
    Network/Alliance
  • Diabetes, Cancer, Hepatitis, Scoliosis, Kidney, Heart, Lung, etc.
  • Children

    Adults

    Older Persons

    National
    Main
    30 Philippine Cancer Society Inc.

    NCR - National Capital Region
    Network/Alliance
  • CANCER PATIENTS
  • Children

    Adults

    Older Persons

    National
    Main
    31 Philippine Cerebral Palsy Incorporated

    NCR - National Capital Region
    Persons w/ Disabilities (PWD) Group
  • Cerebral Palsy, GDD, Down Syndrome, ADHD, ASD
  • Children

    Adults

    Older Persons

    National
    Main
    32 Philippine Coalition Against Tuberculosis

    NCR - National Capital Region
    Network/Alliance
  • Tuberculosis
  • Children

    Adults

    Older Persons

    National
    Main
    33 Philippine Dyslexia Foundation Inc.

    NCR - National Capital Region
    Individual Patient/Patient Support Group
  • Learning disabilities such as Dyslexia, ADD, ADHD
  • Children

    Adults

    National
    Main
    34 Philippine Foundation for Breast Care, Inc.

    NCR - National Capital Region
    Individual Patient/Patient Support Group
  • Breast Cancer
  • Adults

    National
    Main
    35 Philippine Glaucoma Foundation, Inc.

    NCR - National Capital Region
    Individual Patient/Patient Support Group
  • Glaucoma
  • Children

    Adults

    Older Persons

    indigent patients nationwide 
    Main
    36 Philippine Leprosy Mission Inc.

    NCR - National Capital Region
    Individual Patient/Patient Support Group
  • Leprosy and other NTDs
  • Children

    Adults

    Older Persons

    National
    Main
    37 Philippine Mental Health Association

    NCR - National Capital Region
    Network/Alliance
  • Mental disorders, Neurodevelopmental conditions
  • Children

    Adults

    Older Persons

    National
    Main
    38 Philippine Society for Orphan Disorders, Inc.

    NCR - National Capital Region
    Individual Patient/Patient Support Group
  • Rare Diseases whose prevalence is 1: 20,000 of the Philippine Population
  • Children

    Adults

    Older Persons

    National
    Main
    39 Philippine Tourette Syndrome Association (PTSA)

    NCR - National Capital Region
    Individual Patient/Patient Support Group
  • Tourette Syndrome
  • Children

    Adults

    National
    Main
    40 Pinoy Plus Advocacy Pilipinas, Inc.

    NCR - National Capital Region
    Network/Alliance
  • HIV Positive
  • Children

    Adults

    Older Persons

    Regional
    Main
    41 Positive Action Foundation Philippines Inc. (PAFPI)

    NCR - National Capital Region
    Individual Patient/Patient Support Group
  • People living with HIV and their families.
  • Children

    Adults

    Older Persons

    National
    Main
    42 Project Brave Kids, Inc.

    NCR - National Capital Region
    Individual Patient/Patient Support Group
  • pediatric cancer
  • Children

    Main
    43 Project Pink Support Group Inc.

    NCR - National Capital Region
    Individual Patient/Patient Support Group
  • Any type of cancer
  • Adults

    Older Persons

    Main
    44 Project Red Ribbon Care Management Foundation, Inc.

    NCR - National Capital Region
    Individual Patient/Patient Support Group
  • HIV and AIDS
  • Children

    Adults

    Older Persons

    National
    Main
    45 Psoriasis Philippines

    NCR - National Capital Region
    Network/Alliance
  • Psoriasis, Psoriatic Arthritis
  • Children

    Adults

    Older Persons

    National
    Main
    46 Resources for the Blind, Inc.

    NCR - National Capital Region
    Persons w/ Disabilities (PWD) Group
  • Visual Impairment (Blind, Low Vision with other Disability,Cataract surgery)
  • Children

    Adults

    Older Persons

    National
    Main
    47 Rheumatology Educational Trust Foundation, Inc.

    NCR - National Capital Region
    Individual Patient/Patient Support Group
  • Lupus, Rheumatoid Arthritis, Psoriatic Arthritis, Ankylosing Spondylitis, etc
  • Children

    Adults

    Older Persons

    National
    Main
    48 Scleroderma Society of the Philippines, Inc.

    Region III - Central Luzon
    Individual Patient/Patient Support Group
  • Scleroderma, mixed connective tissue disease and related rheumatic illness
  • Children

    Adults

    Older Persons

    National
    Main
    49 Scoliosis Philippines Support Group Inc.

    Region XI - Davao Region
    Individual Patient/Patient Support Group
  • Scoliosis
  • Children

    Adults

    Older Persons

    National
    Main
    50 SLMC - Arthritis Club

    NCR - National Capital Region
    Individual Patient/Patient Support Group
  • Rheumatoid arthritis, psoriatic arthritis
  • Adults

    Regional
    Main
    51 Smile Train Philippines Foundation, Inc.

    NCR - National Capital Region
    Individual Patient/Patient Support Group
  • Cleft Lip and Palate
  • Children

    Adults

    National
    Main
    52 The Cancer Resource and Wellness (CAREWELL) Community Foundation

    NCR - National Capital Region
    Individual Patient/Patient Support Group
  • Cancer
  • Adults

    Limited to Metro Manila
    Main
    53 The Ruth Foundation for Palliative and Hospice Care, Inc.

    NCR - National Capital Region
    Individual Patient/Patient Support Group
  • CVD, CKD, CA, Nuero Disease, Pulmonary Disease, Renal, Diabetes
  • Children

    Adults

    Older Persons

    Regional (focus: locality of Muntinlupa and nearby city like Parañaque and Las Piñas)
    Main
    54 Touched by Max, Inc.

    NCR - National Capital Region
    Individual Patient/Patient Support Group
  • CML./GIST
  • Children

    Adults

    Older Persons

    National
    Main
    55 Yellow Warriors Society Philippines

    CAR - Cordillera Administrative Region
    Individual Patient/Patient Support Group
  • Viral Hepatitis
  • Children

    Adults

    Older Persons

    National
    Main

    Classification by Region

    No. Region Name
    Total Count:
    View
    1 NCR - National Capital Region
    45
    2 CAR - Cordillera Administrative Region
    1
    3 Region III - Central Luzon
    2
    4 Region IV-A - CALABARZON
    1
    5 Region VI - Western Visayas
    1
    6 Region VII - Central Visayas
    4
    7 Region XI - Davao Region
    1